Trisomy tribe

[...] that she didn't notice him creep out of bed and downstairs! With the enforced rest and the soft diet we are doing better with the prolapse - I only needed to reduce it about four times yesterday [...]

[...] The novelty of enforced rest and a soft diet has long since worn off for Noah and it is a battle of wills to keep him still. This morning he [...]

[...] We made Noah a special cake for tea (when mixed with ice-cream this counts as part of a soft diet) saying goodbye epic and Oswald (the pet names for his stomas). Oswald has been putting up quite [...]

[...] window with a windowsill useful for storage. Me and dad then went to enquire about Ronald McDonald house, as the hospital wasn't expecting us neither was Ronald McDonald. We had a bit of a [...]

[...] it wasn't helped by the horrible half-way house type hostel that we had to sleep in while Ronald McDonald house was being rebuilt. It was much better when we decided to pay for a motel (on the days it [...]

[...] faxed some stuff to Palmy hospital so the relevant person here can try to book a space at Ronald McDonald House for us. I spoke to both these people - in one case this involved having to phone the [...]

[...] When we were in Wellington hospital and soon afterwards we were not monitoring Lily's money and were shocked to discover that [...]

We made Noah a special cake for tea (when mixed with ice-cream this counts as part of a soft diet) saying goodbye epic and Oswald (the pet names for h [...]

[...] This is Hannah We're here in Wellington hospital. After arriving with mum concerned we were 15 minutes we found out the hospital wasn't [...]

[...] and X-Ray booked in Palmy this week and I thought we'd go if only so that news of his Wellington surgery gets documented in his Palmy notes. Paul wants me to write that he has launched a medical [...]

[...] it with a bag of frozen peas. I was dreading ending up in hospital here and causing Wellington surgery to be delayed, but it looks like we're all set to go tomorrow morning. We will try to keep [...]

[...] worried, came home to see if he was there and was then ready to call the police. Finally a teacher aide and the school secretary found him sitting quietly in the unused foyer a bit sad that he had [...]

[...] A teacher aide and fellow student from Noah's school have just come to visit him and sit with him for an hour [...]

[...] in the outpatient day ward and returned to the ward during the day. One advantage of Noah having fentanyl post-op was that he needed a monitor so we got a single room opposite the nurses station. We [...]

[...] sat on the toilet he said "Oswald is back" _Oswald was the naughty prolapsing ileostomy stoma. About 6cm of rectum had prolapsed which Paul was luckily able to easily reduce, but we [...]

[...] I have just finished one of my massey exams, next one on Tues then I've finished my course! Two days afterwards it's off to UK for Paul, [...]

We had a great trip, just Paul an dI and Noah. Three nights in Singapore, overlooking the beach of Sentosa Island, going to the small 'Universal Studi [...]

[...] centre for preschoolers with special needs, so I thought the title was apt) paediatric autoimmune neuropsychiatric disorder related to group A streptococcus, this should hopefully up my medical [...]